As November 29 approaches which is Osteonecrosis-Avascular Necrosis Awareness Day I want to mention this and would also include
Legg-Calve-Perthes
Legg-Calvé-Perthes Disease, or simply Perthes Disease, is a rare but impactful hip bone disorder that primarily affects children. This condition, classified as a form of osteonecrosis or avascular necrosis, can make it painful for children to engage in activities like walking, running, and playing – activities that most kids take for granted. In this blog post, we aim to provide a comprehensive understanding of Perthes Disease, its treatment options, and the support available for affected individuals and families.
What Is Legg-Calvé-Perthes Disease?
Perthes Disease is a rare condition that primarily affects the hip joint. It occurs when the blood supply to the femoral head (the “ball” of the hip joint) becomes restricted. Without an adequate blood supply, the bone begins to deteriorate, leading to pain and limited movement. This can be an emotionally and physically challenging experience for children.
Our Mission: Advocating, Educating, and Motivating
Before we delve into the details of treatment and support, it’s essential to understand that there is a network of support available for those dealing with Perthes Disease. We are here to advocate, educate, and motivate parents, adults, and kids who are navigating their Perthes journey. We want to emphasize that you are not alone, and we understand your story, and we’re here to help.
Treatment Options for Perthes Disease
The treatment of Legg-Calvé-Perthes Disease varies based on the child’s age, the stage of the condition, and its severity. Here are some common treatment options:
- Observation: In the early stages, doctors may choose to closely monitor the child’s condition to determine if the hip joint heals naturally.
- Rest and Limited Weight-Bearing: Children may be advised to reduce physical activity and use assistive devices like crutches to reduce strain on the affected hip.
- Physical Therapy: Physical therapy is often recommended to improve hip joint mobility and strengthen the surrounding muscles.
- Orthopedic Devices: Some children may require braces or casts to keep the hip in a favorable position and facilitate healing.
- Surgical Interventions: In advanced cases, surgical procedures like hip osteotomy or hip joint replacement may be necessary to correct hip deformities and alleviate pain.
PRP and Stem Cell Therapy as Treatment Options
In recent years, Platelet-Rich Plasma (PRP) and Stem Cell Therapy have gained attention as potential treatments for Perthes Disease. These therapies involve using the patient’s own blood components or stem cells to stimulate tissue repair and regeneration. While research is ongoing, they hold promise as less invasive treatment options.
Support Organizations: USA, Australia, and the UK
Support and information are crucial for families and individuals dealing with Perthes Disease. Here are some organizations in the USA, Australia, and the UK that provide valuable assistance:
In the USA:
- Perthes Kids Foundation (pertheskids.org)
- Pediatric Orthopedic Society of North America (POSNA) – posna.org
In Australia:
- Perthes Association Australia (perthes.org.au)
In the UK:
- Perthes Association (perthes.org.uk)
- Great Ormond Street Hospital for Children (gosh.nhs.uk)
Legg-Calvé-Perthes Disease can be a challenging journey, but with the right treatment and support, children and families can find hope and strength. By connecting with support organizations and exploring innovative treatment options like PRP and stem cell therapy, there is a brighter outlook for those living with Perthes Disease. Remember, you are not alone, and there is a community that understands and is ready to help you through your Perthes journey.
Joint Purpose 