Make your own hand sanitizer

  When it comes to preventing the spread of infectious diseases like colds , flu, and now COVID-19, nothing beats good old-fashioned hand washing.  But if water and soap aren’t available, your next best option, according to the Centers for Disease Control and Prevention (CDC)Trusted Source, is to use an alcohol-based hand sanitizer. Unless you have... Continue Reading →

Rare Week In Washington DC

I had an amazing experience participating in Rare Week in Washington DC. I arrived Feb 25 and left Feb 29, 2020. Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators. I... Continue Reading →

Holiday Heart Syndrome

Despite how it sounds, it's not brought on by missing your loved ones this time of year The holiday season is know for enticing even the strictest eater to indulge in festive sugary treats and alcohol at nearly every gathering. Doctors say this can lead to heart troubles. Holiday heart syndrome was coined in 1978... Continue Reading →

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