I love to travel but when I do, I know when I get home I will be wiped out by fatigue for sometimes 2-3-4 days. This little mini trip was no exception. Fatigue can often be described in various ways. Sometimes it is described as feeling a lack of energy and motivation (both mental and... Continue Reading →
I had an amazing experience participating in Rare Week in Washington DC. I arrived Feb 25 and left Feb 29, 2020. Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators. I... Continue Reading →
My last post of 2019 and looking forward to the New Year and also a new decade. I would like to take this time to thank you all for reading and following my blog. I am grateful for each one of you. Tonight isn’t your typical New Year’s Eve. The world is welcoming not just... Continue Reading →
Despite how it sounds, it's not brought on by missing your loved ones this time of year The holiday season is know for enticing even the strictest eater to indulge in festive sugary treats and alcohol at nearly every gathering. Doctors say this can lead to heart troubles. Holiday heart syndrome was coined in 1978... Continue Reading →
Finally Avascular Necrosis-Osteonecrosis has an official awareness date. The date is November 29 I have been working on proclamations for several months and I am in the process of getting the awareness day Nationally recognized as well. I have been advocating for over 5 years on Avascular Necrosis -Osteonecrosis and I am proud and grateful... Continue Reading →
If you are preparing for an exciting and fun upcoming Holiday trip it can be a stressful, and living with chronic pain can often feel like added extra baggage to take with you. Whether you are traveling for business, or a get a way, or going to see family or friends over the holiday, or... Continue Reading →
Avascular Necrosis/ Osteonecrosis Support Int'l https://www.facebook.com/groups/DeadBoneDiseaseAVN/?ref=share
Joint Purpose 
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