Link-Between Hearing Loss and RA

When we think of hearing loss, you may associate it with your loved one who’s always asking you to repeat yourself, or the friend who may struggle to follow conversations. Hearing loss is often caused by exposure to excessive noise and is even linked to the natural aging process. But did you know that hearing... Continue Reading →

Everyone Can Get Covid19 A Must Read for RA and Lupus Patients or anyone taking Plaquenil

I am not picking in our POTUS because whether you like him or dislike him he has a really tough job, that being said we must know the facts about Plaquenil and stop some of guessing games. I don’t know if he was given misinformation but from what I have read there is not evidence... Continue Reading →

Make your own hand sanitizer

  When it comes to preventing the spread of infectious diseases like colds , flu, and now COVID-19, nothing beats good old-fashioned hand washing.  But if water and soap aren’t available, your next best option, according to the Centers for Disease Control and Prevention (CDC)Trusted Source, is to use an alcohol-based hand sanitizer. Unless you have... Continue Reading →

Rare Week In Washington DC

I had an amazing experience participating in Rare Week in Washington DC. I arrived Feb 25 and left Feb 29, 2020. Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators. I... Continue Reading →

What Really Helps Arthritis

If you’re asking yourself- what can help my arthritis, I will try to clear up a few of the most popular misconceptions for you. Here’s are a list of the most common questions about Arthritis and the facts about what can help arthritis pain. 1. Fact or Fiction? There is no cure for arthritis True.... Continue Reading →

Thank You Alabama

Grateful We are moving along state by state Alabama is giving us for rare disease awareness the week of February 20,2020 to February 27, 2020 as Avascular Necrosis Osteonecrosis Awareness Week!!! And on November 29 Avascular Necrosis Osteonecrosis Awareness Day!! Every state so far is coming on board!! Thank you Lord Deb Andio

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