I had an amazing experience participating in Rare Week in Washington DC. I arrived Feb 25 and left Feb 29, 2020. Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators. I... Continue Reading →
If you’re asking yourself- what can help my arthritis, I will try to clear up a few of the most popular misconceptions for you. Here’s are a list of the most common questions about Arthritis and the facts about what can help arthritis pain. 1. Fact or Fiction? There is no cure for arthritis True.... Continue Reading →
Grateful We are moving along state by state Alabama is giving us for rare disease awareness the week of February 20,2020 to February 27, 2020 as Avascular Necrosis Osteonecrosis Awareness Week!!! And on November 29 Avascular Necrosis Osteonecrosis Awareness Day!! Every state so far is coming on board!! Thank you Lord Deb Andio
My last post of 2019 and looking forward to the New Year and also a new decade. I would like to take this time to thank you all for reading and following my blog. I am grateful for each one of you. Tonight isn’t your typical New Year’s Eve. The world is welcoming not just... Continue Reading →
Today is GIVING TUESDAY and I want everyone to research a charity before just giving to one. Some charities no longer seem to be running. Example The NONF - which I used to donate and be a member of Since 2017 they haven’t filed a tax return so they are no longer active So I... Continue Reading →
Finally Avascular Necrosis-Osteonecrosis has an official awareness date. The date is November 29 I have been working on proclamations for several months and I am in the process of getting the awareness day Nationally recognized as well. I have been advocating for over 5 years on Avascular Necrosis -Osteonecrosis and I am proud and grateful... Continue Reading →
If you are preparing for an exciting and fun upcoming Holiday trip it can be a stressful, and living with chronic pain can often feel like added extra baggage to take with you. Whether you are traveling for business, or a get a way, or going to see family or friends over the holiday, or... Continue Reading →
Joint Purpose 
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