Jessie Benton Fremont (1824-1902). Fremont was a writer and political activist. She was considered the brains behind her husband, John C. Fremont, and his famous exploration westward. She turned his notes into readable books and made connections in Washington, D.C., that eventually made him famous. (Recommended biography here.) She was born near Lexington, Virginia, the second... Continue Reading →
March is Women’s History Month – Susan B. Anthony
I recently was in Washington DC for Rare Disease Week on Capitol Hill and I attended a focus group as well. I went early to look around as I am a history lover and I visited many historical places and since March is Women’s History that is my focus throughout the month as well as... Continue Reading →
What to do if you suddenly run out of energy-spoons when traveling
I love to travel but when I do, I know when I get home I will be wiped out by fatigue for sometimes 2-3-4 days. This little mini trip was no exception. Fatigue can often be described in various ways. Sometimes it is described as feeling a lack of energy and motivation (both mental and... Continue Reading →
Rare Week In Washington DC
I had an amazing experience participating in Rare Week in Washington DC. I arrived Feb 25 and left Feb 29, 2020. Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators. I... Continue Reading →
One Delicious Salad
Red romaine Baby Spinach Arugula Chic peas Tomatoes Orange pepper Avocado Artichoke Very little mozzarella shredded cheese Cilantro Lime Dressing In a food processor or blender combine: • 1/2 bunch cilantro leaves • 1/4 cup lime juice, 2 tablespoons white vinegar • 1/2 teaspoon brown sugar • 2 cloves of garlic (minced) • 3/4 teaspoon... Continue Reading →
The Importance of Herbs and Spices
Herbs and spices are a great way to add flavor, color, and fragrance to dishes without adding extra fat, sugar, or salt. They also provide powerful antioxidants, and have a range of other health benefits! Herbs, like parsley, sage, rosemary, basil, thyme, and dill, are leaves and can be used fresh or dried. Spices come from... Continue Reading →
What Really Helps Arthritis
If you’re asking yourself- what can help my arthritis, I will try to clear up a few of the most popular misconceptions for you. Here’s are a list of the most common questions about Arthritis and the facts about what can help arthritis pain. 1. Fact or Fiction? There is no cure for arthritis True.... Continue Reading →
Thank You Alabama
Grateful We are moving along state by state Alabama is giving us for rare disease awareness the week of February 20,2020 to February 27, 2020 as Avascular Necrosis Osteonecrosis Awareness Week!!! And on November 29 Avascular Necrosis Osteonecrosis Awareness Day!! Every state so far is coming on board!! Thank you Lord Deb Andio

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