Rare Week In Washington DC

I had an amazing experience participating in Rare Week in Washington DC. I arrived Feb 25 and left Feb 29, 2020. Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators. I... Continue Reading →

Thank You Alabama

Grateful We are moving along state by state Alabama is giving us for rare disease awareness the week of February 20,2020 to February 27, 2020 as Avascular Necrosis Osteonecrosis Awareness Week!!! And on November 29 Avascular Necrosis Osteonecrosis Awareness Day!! Every state so far is coming on board!! Thank you Lord Deb Andio

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