I love to travel but when I do, I know when I get home I will be wiped out by fatigue for sometimes 2-3-4 days. This little mini trip was no exception. Fatigue can often be described in various ways. Sometimes it is described as feeling a lack of energy and motivation (both mental and... Continue Reading →
I had an amazing experience participating in Rare Week in Washington DC. I arrived Feb 25 and left Feb 29, 2020. Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators. I... Continue Reading →
If you’re asking yourself- what can help my arthritis, I will try to clear up a few of the most popular misconceptions for you. Here’s are a list of the most common questions about Arthritis and the facts about what can help arthritis pain. 1. Fact or Fiction? There is no cure for arthritis True.... Continue Reading →
My last post of 2019 and looking forward to the New Year and also a new decade. I would like to take this time to thank you all for reading and following my blog. I am grateful for each one of you. Tonight isn’t your typical New Year’s Eve. The world is welcoming not just... Continue Reading →
Holidays without a mother father or both. My mom has been gone for almost 20 years now. And 31 years without my father I've gone through a lot of firsts without my parents I have survived the 2 times that didn’t even seem imaginable the death of my mom and dad My mom and dad... Continue Reading →
Today is GIVING TUESDAY and I want everyone to research a charity before just giving to one. Some charities no longer seem to be running. Example The NONF - which I used to donate and be a member of Since 2017 they haven’t filed a tax return so they are no longer active So I... Continue Reading →
If you are preparing for an exciting and fun upcoming Holiday trip it can be a stressful, and living with chronic pain can often feel like added extra baggage to take with you. Whether you are traveling for business, or a get a way, or going to see family or friends over the holiday, or... Continue Reading →
Joint Purpose 
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