It’s time every state and country just stay home for a couple more weeks.
Stay Home Stay Safe
What happens inside the body with covid19
The short on covid19 and what happens inside the body It happens when someone infected with covid19 lets it out via a cough or sneeze You can’t see it- but the droplet makes it’s way into someone else say their nose eyes or mouth The virus It can find its way deep inside the lungs.... Continue Reading →
Make your own hand sanitizer
When it comes to preventing the spread of infectious diseases like colds , flu, and now COVID-19, nothing beats good old-fashioned hand washing. But if water and soap aren’t available, your next best option, according to the Centers for Disease Control and Prevention (CDC)Trusted Source, is to use an alcohol-based hand sanitizer. Unless you have... Continue Reading →
What to do if you suddenly run out of energy-spoons when traveling
I love to travel but when I do, I know when I get home I will be wiped out by fatigue for sometimes 2-3-4 days. This little mini trip was no exception. Fatigue can often be described in various ways. Sometimes it is described as feeling a lack of energy and motivation (both mental and... Continue Reading →
Rare Week In Washington DC
I had an amazing experience participating in Rare Week in Washington DC. I arrived Feb 25 and left Feb 29, 2020. Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators. I... Continue Reading →
What Really Helps Arthritis
If you’re asking yourself- what can help my arthritis, I will try to clear up a few of the most popular misconceptions for you. Here’s are a list of the most common questions about Arthritis and the facts about what can help arthritis pain. 1. Fact or Fiction? There is no cure for arthritis True.... Continue Reading →
Happy New Year – And New Decade
My last post of 2019 and looking forward to the New Year and also a new decade. I would like to take this time to thank you all for reading and following my blog. I am grateful for each one of you. Tonight isn’t your typical New Year’s Eve. The world is welcoming not just... Continue Reading →
Joint Purpose 
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